ADSM Consulting, Director EU Affairs, Brussels, Belgium
Over the past 20 years, Annette Dumas has been involved in European policy work, for the pharmaceutical industry, patient organisations, Alzheimer NGOs and research bodies.
Annette’s engagement in dementia started in 2006, as a consultant for Alzheimer Europe. She has been instrumental in making dementia a European public health priority, contributing to and promoting the organisation’s strategy on European health, social and research policies, legislation and measures that affect people with dementia and their carers. Annette has also supported national Alzheimer NGOs in shaping national dementia strategies, promoting the inclusion of people with dementia in society.
Annette is currently engaged in a IMI/EFPIA funded project : MOPEAD (Models Of Patient Engagement for Alzheimer’s disease), co-leading the „Communication and Dissemination” Work Package.
Annette has participated in a number of European conferences and roundtables, either as a speaker or a member of the organising committee.
She has also published in professional and European publications.
Who tackles dementia at EU level?
Over the years, dementia has been recognised as a major global challenge. The disease, that affects over 6 million people in Europe, has a serious impact on the financial sustainability of national health and social systems. Those living with the condition, their family and carers also have to cope with the consequences of the disease.
Dementia is strongly associated with old age. In the current demographic context, the ageing of the population and the predicted increase in the number of people with dementia painfully depict a bleak future unless significant actions are undertaken.
This is why since 2009, thanks to the coordinated action of a number of European and national leaders, greater awareness about dementia has been generated. A number of European and national initiatives have given dementia the place it rightly deserves in the political discussions and health initiatives. The European Union (EU) now has embedded dementia in its health programme and research agenda and an increasing number of Member States have engaged in a national dementia strategy. Significant attention is now being paid to diagnosis and treatment of dementia, care and social support of people affected by the disease and their carers. The surge to better understand the disease is supported by increased EU funding and joint research efforts. The inclusion of people of dementia in society is now more visible thanks to the active and public engagement of patients and their families in raising awareness as well as the development of Dementia-Friendly Communities.
All these initiatives have helped spearhead global action on dementia.
The presentation will give an overview of the EU action on dementia over the years until now, and how civil society has strongly helped raise awareness. The influence of EU and international key players who contributed to the kick-off of the global action against dementia will also be presented.